March Spotlight Article - ALS Support Manual

As many of you are aware, it takes a community to come together in support of individuals on their ALS journey. Over the past year, we have been honored to collaborate with some incredible local organizations to enhance our support for our ALS heroes.

In true “west side” fashion, we kept running into Ben Coffaro from the Chair Force One Foundation. Our initial interactions arose from both organizations assisting Paul Tepe and his family, with us providing a lift chair and CF1 supplying a wheelchair-accessible van.

Thanks to Ben’s connections with the Reds, he kindly included Always Lifting Spirits and Operation Ramp It Up in the Reds Triple Play ALS Awareness Day scheduled for June 2024. It was an unforgettable day at the Great American Ballpark, especially meaningful for the Weber family, as Jeff was a devoted Reds fan. During our planning meetings for the event, we connected with other organizations supporting the ALS community, leading us to envision creating an ALS support manual to help those we meet navigate local resources.

In December, we were thrilled to publish the first edition of this manual, which includes:

  • Always Lifting Spirits - the Jeff Weber Foundation providing lift chairs

  • Chair Force 1 Foundation offering wheelchair-accessible vans

  • Kevin W. Donovan Foundation arranging trips or event attendance for pALS

  • Live Like Lou Foundation supporting families by building and connecting communities

  • Operation Ramp It Up supplying wheelchair ramps

  • People Working Cooperatively conducting essential home repairs

  • Team Gleason Foundation providing technology and equipment to enhance life experiences

  • Global Neuro YCare offering resources to help families discuss ALS with children

We were fortunate to partner with Joseph Berning Printing Co. to print our initial run of booklets at cost.

Each of the local charities has several copies of the Support Manual. When any of us meet someone facing ALS, this resource proves invaluable as they navigate their journey.

We look forward to including even more organizations in our second edition that support the ALS community in the Cincinnati area.


February Spotlight Article - David J. Curry

“Just one more day.” This is the mantra of David Curry. After spending even a brief amount of time with him, it becomes evident that David maximizes each day to its fullest.

At 80 years old, David is a husband, father, grandfather, and a courageous individual battling ALS. His professional journey spans 52 years as a college professor, with teaching terms at institutions including the University of Iowa, the University of Colorado Boulder, and international locations in France and Australia. He concluded his academic career with 34 years at the University of Cincinnati, where he specialized in Marketing and Statistics. David and his wife, Patty, have been retired for two years.

In retirement, David enjoys quality time with his family, particularly his three daughters—Monica, Olivia, and Lauren—and his grandson, Leo. He has also delved into creative pursuits, writing songs, books, short stories, over 20 editorials,  and screenplays. As a member of the rock band “Third Degree Burn,” he has performed at local venues, including MadTree Brewery.

An athlete at heart, David was a ski racer during his college years in Boulder and skied many a slope over the years with his family.  Jackson Hole being his favorite destination. 

David's journey with ALS began after a hip replacement surgery in December of 2023. Initially excelling in rehabilitation, he soon faced challenges during his regular workouts, ultimately leading to a fall that revealed weakness in his limbs. Following a neurologist appointment in July, doctors suspected an autoimmune disease or neuropathy. By fall, after receiving four out of six infusions with no improvement, David was diagnosed with ALS in December of 2024.

Despite his diagnosis, David remained committed to completing his passion project—a book titled Fast Horses and Big Payouts, intended for his friends and grandson. Utilizing Microsoft Word's dictation feature and ChatGPT for assistance, he persevered to finish the book, which explores the world of betting, watching, and attending thoroughbred races. The foreword of this book reflects the essence of David Curry's character.

Currently, he is co-authoring a science fiction screenplay with his daughter Olivia, having completed 20 scenes thus far. As his hand strength weakens he relies on the use of technology to continue this collaboration with his daughter. 

David is not only highly intelligent, talented, and successful, but also embodies kindness, humor, and inspiration. He faces the challenges of a devastating disease with unwavering determination, striving to embrace each day with the philosophy of living just “one more day” to the fullest.

To buy David’s book, simply click on the link Fast Horse, Big Payouts by David J. Curry.  David has shared that the proceeds from this book will be donated to organizations that support ALS patients and research.

January Spotlight Article - Reflecting on a Year of Impact and Community

The start of a new year is a time when we pause to reflect on the past and set goals for the future. This year, we have much to look back on with pride and gratitude, especially concerning our efforts to support those affected by ALS. Each event and initiative has been a testament to the strength and generosity of our community.

Celebrating Our Heroes

Throughout the year, we shared many inspiring stories of those facing ALS. Their courage and determination in the face of adversity continue to motivate us to strive harder in our mission. These individuals are more than just names to us; they are our heroes and the driving force behind our efforts. You can find many of their stories on the archived articles page.

Memorable Events for a Noble Cause

Our 9th Annual Event at Wegman Company was a significant milestone, bringing together supporters and advocates united in their commitment to the cause. We also were a part of various other events that combined fun and fundraising, such as:

  • Beer for a Cause at Taft Brewpourium:  The Taft Brewpourium hosted a special beer. For each beer sold $1 was donated towards our foundation.

  • Sip and Shop at Rustic Happiness: An event that perfectly blended shopping with philanthropy, allowing attendees to contribute to a worthy cause while enjoying a unique retail experience.

  • Walk to Defeat ALS: A heartfelt event where families, friends, and supporters walked together to raise funds and awareness for ALS.

  • ALS Triple Play Reds Game: A day at the Great American Ballpark with a purpose, where sports fans came together to support ALS initiatives.  We were excited to join forces and get to know the ChairForce 1 and Operation Ramp It Up organizations.

Community Engagement and Sportsmanship

Community involvement was further showcased through several sporting events, including:

  • Harrison High School Basketball: The Harrison Athletic Department graciously deferred ticket sales into donations for us while spreading awareness about ALS.

  • Jim Robb Outing: The Always Lifting Spirits family were excited to play in this tournament honoring Jim.

  • Chair Force 1 Pickleball Tournament: The Always Lifting Spirits crew entered four teams to participate in the tournament.

Key Milestones and Achievements

This year also marked some key achievements in our ongoing mission:

  • Collaboration with JANZ: We began working with JANZ Medical Supply, enhancing our ability to provide lift chairs to those affected by ALS.  

  • Creation of an ALS Support Manual:  In collaboration with Chair Force 1, we have created an extensive guide aimed at providing essential information and support for ALS patients and their caregivers. This resource features eight nonprofit organizations dedicated to assisting individuals affected by ALS.

  • Delivery of Our 100th Chair: A significant milestone that underscores our commitment to improving the quality of life for those living with ALS by providing mobility and comfort.

Anticipating the Year 2025

Get ready to party on April 6, 2025, because we’re throwing our 10th Annual Fundraising Bash at Jim and Jack’s! We're beyond excited to celebrate Jeff Weber’s incredible legacy in style at this fresh venue. Expect a fabulous afternoon filled with delicious food, thrilling raffles, silent auctions, and all sorts of fun! If you can contribute to our silent auction or basket raffles, give a shout-out to Greg Weber, our Donation Coordinator at webs_45233@yahoo.com.

Keep your eyes peeled on our website and social media for updates on how you can join the fun and support ALS patients!

As we look back on the past year, we are filled with gratitude for the support and dedication of our community and donors.  Each event, partnership, and achievement has played a crucial role in our journey. As we move forward into 2025, we remain committed to our mission and inspired by the heroes we serve. Together, we can continue to make a difference.

December Spotlight Article - Tom and Ann LeSaint

Tom and Ann LeSaint are a delightful couple living on the Westside of Cincinnati. Tom retired from his engineering career a few years back. Ann is a remarkably determined woman. Not only did she pursue her nursing degree later in life after being a Stay-at-Home mom, School/Church volunteer, and a Girl Scout Leader, but she also took part in the Chicago Marathon in her 50s, alternating between running and walking. She had always been an active and exercise-conscious person. They have unfortunately found themselves now part of the ALS community. Their journey to diagnosis, like many others, has been lengthy, with some wrong turns.

Ann began experiencing fatigue while traveling to attend her granddaughter’s college graduation in May 2023. On their way home, she choked on a candy bar, prompting Tom to quickly maneuver the car to assist her. In retrospect, this choking incident was a crucial warning sign. Their path mirrored that of many other ALS patients, beginning with visits to their primary care general practitioner and an ENT specialist, but yielding no answers. Ann's symptoms escalated to the point where she struggled to open a candy bar, along with unexplained falls and her voice became increasingly raspy.

Last December 2023, Tom and Ann traveled to San Francisco to support their son and daughter-in-law, who were welcoming their third child. Upon their arrival, Ann found it difficult to climb the steps to the family's apartment. Concerned about this and other symptoms, their daughter-in-law, an ER doctor, expedited their visit to the hospital where she works. Ann underwent two and a half days of tests, after which a neurosurgeon diagnosed her with ALS. The neurosurgeon was glad to hear that the LeSaints lived near Cincinnati because he had a colleague who could guide them through the process—none other than Dr. Neel. He even contacted Dr. Neel to arrange an appointment for them upon their return to Cincinnati.

Tom has taken on the caregiver role with the same diligence he applied as an engineer. He researches extensively to support Ann, gathers data, and advocates for her needs. Tom attended  the Reds Triple Play Day at Great American Ball Park in June.  While there Tom sought more information and connections. He met board members from Always Lifting Spirits and reached out with questions. Initially, in June, he felt a lift chair wasn't necessary, but by November, he recognized how beneficial it would be for Ann and decided to reach out again.

Now, Ann enjoys relaxing in her chair, pursuing her passion for reading,  writing murder novels, and catching the latest Hallmark movies. Ann takes great pride in being a mother to four and a grandmother to thirteen. She has a particular love for country music, especially the song “Dirt On My Boots” by Jon Pardi, which all her children and grandchildren have learned and often send her videos of their performances. With a bit of "dirt on her boots," Ann continues to show resilience and determination in staying positive along this difficult ALS journey with Tom right by her side.

Ann and Tom LeSaint share a big THANK YOU to the Always Lifting Spirits Foundation.

November Spotlight Article - The Weber Kids

Jeff Weber is the oldest of the Weber Family.  He lost his battle with ALS at the age of 48.  Jeff’s siblings stepped up to support Jeff during his battle and continue his legacy today, by the work they do to support pALS in the tri-state area.

Jeff was a dad, brother, son, and friend that everyone loved and knew they could count on.  He loved his family and with gentle humor had lots of fun teasing his younger siblings.  It has been over ten years since losing Jeff, but his siblings still reminisce about growing up with Jeff.

Jennifer, the second born, shares:

Jeff was born April 3, 1965 and I was born March 28, 1966. We celebrated our birthdays together for ou entire childhood. As we got older Jeff would always tease me about how old I was for the 1 week we were the same age. How I miss sharing our birthdays.

Jeff’s Siblings: Jennifer, Amy, Sara, and Greg

Jennifer’s 1st and Jeff’s 2nd birthdays.

Amy, the middle Weber daughter shares:

A favorite memory of Jeff was the little cards he’d give my girls for each holiday with cash enclosed and his signature handwriting and always Love, Jeff, Ashley and Michelle. Family meant the world to Jeff. He loved holidays and everyone being together.

From Left to Right:  Jennifer, Greg, Judy (mom), Sara, Amy with Jeff in the center.

Greg, the youngest Weber son shares:

Jeff was a natural athlete that was really good at any sport he played.  What helped him succeed was his competitive drive and refusal to lose. I was lucky enough to play basketball with him and his friends for a few years in a men's league to see this firsthand but also was on the receiving end of many beatings in basketball, tennis and golf!  I never beat him in anything that we played against each other.  I had a chance, one time playing golf.  Me, my dad and Jeff played one year in Hilton Head and I was playing very well and was winning as we got to the 18th hole to tee off!  Now, I was sharing a cart with Jeff and one thing he could always do was get in my head and throw me off of my game.  As we left 17 and drove to 18 he reminded me that I was beating him by 2 strokes and had a chance to beat him.  We both teed off, he hit a beautiful drive right down the fairway and mine went out of bounds so I had to take a penalty stroke. Now, I am only up 1 stroke!  My next shot I put on the green and he was in a bunker right off the green..At this point, I am feeling pretty good and confident that this was going to be my day!  Jeff chipped out of the bunker and put his ball within 5 feet of the cup.  I had about a 25-30 yard putt but again, was playing well and had a chance!  Since I Was further from the cup, I had to putt first.  As I was set to putt, he magically had a coughing attack to break my concentration.  He apologized and let me putt.  I put it close but not in and at this point, I was thinking that the worst case scenario is we tie which is just as bad as a loss but I Would take it!  He sank his putt and all I had to do was sink mine and it's a successful day!  I got to my ball and while I was reading the green he kept moving into my sight line as a distraction.  He also kept reminding me that if I do sink the putt, we would tie and have to play 18 again until one of us wins.  Usually, my putt would have been a gimme and in fact, my dad told me to pick it up but Jeff said NO WAY!  I had to earn it.  I was confident that from 2-3 feet, I would sink it and live to play another hole.  Between him distracting me and getting in my head, I hit the putt too hard, pushed it past the hole and now had to face the fact that I lost! An absolutely crushing defeat and what made it worse was how hard he was laughing when I missed the putt.  He tried to make me feel better by saying, "Greggy-Boy, one of these days you might beat me but it's not today!"  I never did beat him in anything! Even when I was young, he would never let me win..he'd let me get close but that day on the golf course was my shot! 

Sara, the youngest of the Weber kids shares:


My favorite memory of Jeff is all of our vacations we took together. Jeff , Ashley and Shell and me and my boys along with Judy and Tom went on vacation together every summer. He loved riding his bike to the beach and staying there until 6pm, just like me. Everyone else went back to the house around 4pm and we would still be down there- he would sleep and read. But something funny always happened to him on the vacations- usually the waitress would forget to bring his food at dinner or one year he almost got struck by lightning while sitting on the screened in porch reading a book. One year he and I had to rescue one of the kids who got their head stuck in the stairway railing ! It was always something. My kids would end up sleeping in his room or in his bed or one year they ended up under his bed ! He loved our family vacations and he was so happy and relaxed.

Jeff served as best man for Greg’s 2001 wedding.

Jeff would love a little good friendly competition among his siblings and he would really love us helping other pALS.  This month, there's a showdown between the East and West side of the Queen City to determine who can raise more funds for ALS.  Every dollar equals a point, so let the games begin! Team West, represented by Greg and Sara, is ready to rumble, while Team East, led by Jennifer and Amy, is fired up, too.   Unfortunately ALS is not biased to one side or the other.  ALS has reached each side equally and has even crossed the river to Kentucky.   Which siblings will win???  


To cast your vote click on the link to our November campaign page. This Campaign is closed Thanks to our generous donors we raised enough money to cover our next chair.

Jeff and Sara 2000

July Spotlight Article Kevin Rowland

How does God and AI join forces?  That convergence might not seem obvious to many, but it is apparent to the ALS community that they are joined together by a software engineer named Kevin Rowland.

Kevin is blessed to be married to Jane and raising 3 kids.  Besides being a software engineer at a company that he helped build, he enjoyed hacking, programming projects, and all things technology related.  He is a music lover and enjoyed strumming the guitar and playing piano

The Rowland family was flourishing in 2019 when Kevin’s first symptoms appeared at the age of 47.  The symptoms started by Kevin dropping things with his right hand. At first Jane and Kevin felt that he was developing carpal tunnel, which Kevin was concerned about because keyboarding was how he made a living to support his family.  Kevin is one of the lucky ones in that his diagnosis was relatively quick in comparison to many stories that he has heard.  He had an EMG for the carpal tunnel surgery that ended with a referral to a neurologist.  The neurologist ordered an MRI and a more thorough EMG on multiple quadrants of Kevin’s body.  This led to the diagnosis of ALS.

Jane and Kevin were no strangers to tragedy and hardship, so they perceived Kevin’s diagnosis as a continuation of their faith journey.  Kevin shares that “this kind of news hits you like a head on collision at high speed without a seat belt.  It takes a little time to be in slow motion and thrown through the windshield and hit the ground.” 

As most husbands and fathers do, Kevin went into survival mode.   He was initially told he had 9 months to live so he went into project manager mode, making sure his family’s financial future was secured.  Kevin’s last days of walking and talking were spent isolated due to Covid.  He now reflects that Covid was a blessing and a curse.  Kevin and family couldn’t go anywhere, but they were together.

As many before him Kevin found himself at the ALS Clinic with Dr. Neel and joining the pALS and cALS support groups which helped a lot.  The insight and experiences that the group had were very helpful as Kevin and Jane navigated this new terrain.

Kevin also worked closely with Team Gleason and Bridging Voice.  He continued to use his experience and expertise in technology to help come up with technical solutions to problems that pALS were facing.  He also assisted therapists at the Perlman Center.  He shared his technical solutions with other families.

Kevin has also worked with researchers at Northwestern University.  Kevin helped author a paper and poster submission to the 2023 Robotics: Science and Systems conference. Their presentation was entitled "Identifying Accessibility Barriers to Robotics Research".

Kevin lives by the quote by Padre Pio, “Pray, hope, and don’t worry.  Worry is useless.  God is merciful and will hear your prayer.”  Throughout his ALS journey Kevin has put God first.  Kevin’s faith and technical knowledge have paved the way for improvements for others facing this horrible disease

Click on the you tube link to hear Kevin’s story in his own words.